Last week was my IVIg infusions for the month of August. Haven't heard just yet what my CPK levels are, but I'm feeling pretty good...so, I'm thinking they are still on the decline :) I'm feeling a bit stronger, I think. I'm walking more around the house and at work...as long as it isn't too far. My breathing seems to be better. I don't feel like I'm struggling to get a breath or have something heavy sitting on my chest.
Pain meds are wonderful :) Pain is more controlled. Probably another reason I'm able to try walking around more. I've not needed one of them as often as we thought I might...so, that's a good thing too.
All in all, it's been an okay month as for the polymyositis...if only we could get rid of the medical bills! My insurance company has decided to go back and reverse payments on the last 1 1/2 years of claims to one of my doctors. It has left me with over $11,000 that I supposedly owe to this doctor. I'm appealing it. The doctor's office is appealing it. and, the HR department where I work is looking into it for me as well, but I'm not sure what the outcome is going to me. It makes me really anxious. I hate to owe money to anyone. I guess, though, I could look on a brighter side...with as much as IVIg costs...and with all the other medical expenses...$11,000 isn't all that much.
*sigh* I still don't have that much to pay.
Saturday, August 21, 2010
Sunday, August 8, 2010
Pain Management!
Finally! We found a pain management specialist to manage my pain medications. All I can say is "It's about time!" ha.
I'm feeling pretty good today, which is unusual given that my next IVIg treatment is only 1 1/2 weeks away...usually by now I'd start feeling weaker and just "blah" by now. Buy, hey, I'll take it :)
House is up for sale. I've decided to start working on my PhD and have been accepted into the program to do so...So, I'll be busy, working full time, school, being mom...and polymyositis. The PhD program is a new "self-directed" program...it's very interesting to me. Since my body is so worn out by the time I get home in the evenings, I though that this might give my mind something to do while my body sits and rests. I hope this was a good decision. If not, well, I can always call it quits, right? not that I've ever done that!
I'm feeling pretty good today, which is unusual given that my next IVIg treatment is only 1 1/2 weeks away...usually by now I'd start feeling weaker and just "blah" by now. Buy, hey, I'll take it :)
House is up for sale. I've decided to start working on my PhD and have been accepted into the program to do so...So, I'll be busy, working full time, school, being mom...and polymyositis. The PhD program is a new "self-directed" program...it's very interesting to me. Since my body is so worn out by the time I get home in the evenings, I though that this might give my mind something to do while my body sits and rests. I hope this was a good decision. If not, well, I can always call it quits, right? not that I've ever done that!
Sunday, August 1, 2010
August 1
Today I'm feeling a bit on the sad side. Just tired of the every day dealings of Polymyositis, pain, medications, etc.
Earlier this week I went to get a medication refilled only to have the pharmacy tell me the insurance wouldn't pay for it...it's no longer under formulary. I've been on this med for three years now...couldn't the insurance have given us notice? So, I went a week without it trying to get that all straightened out. A week of withdrawal from it as well. Not fun.
I've also decided to put the house up for sale. I'm afraid I'll lose some money on it b/c of the updates (painting/etc) it needs, but I just can't maintain things in it with my limitations. And, living so far from support makes it difficult when crisis happens I(i.e. falls). So, I'll be looking at townhouses and condos closer to work and friends. Financially it will be better, too.
Financially is another things. These medical bills have been such a big hit on me, I'm wiped out...I have nothing left in savings. We barely get by month to month. In fact, I don't know how we do it. On paper, we shouldn't be able to make it...some how we do. I stress about it each month though...and every time another medical bill comes in the mail.
M is upset about moving. She's worried about leaving friends, starting a new school, etc. All the normal stuff for her to be worried about. But, she'll be okay.
I'm constantly worried about A. He's done nothing to start college in the fall. He missed his deadlines for applications. Of course, this is all my fault. He has no place to live. He's saved no money. Despite having free rent all summer (and before that)...no bills, etc. He's blown everything he's earned. Again, his situation, though, is my fault somehow. He takes no responsibility for himself. I worry so much about him, but I just can't have him live back at home.
I still can't find a doctor to manage my pain medications. My rheumy has made several referrals, but we never get calls back. I don't know what else to do about the pain issue. I'm tired of pain every day. Day in and day out. This isn't a way to live.
Earlier this week I went to get a medication refilled only to have the pharmacy tell me the insurance wouldn't pay for it...it's no longer under formulary. I've been on this med for three years now...couldn't the insurance have given us notice? So, I went a week without it trying to get that all straightened out. A week of withdrawal from it as well. Not fun.
I've also decided to put the house up for sale. I'm afraid I'll lose some money on it b/c of the updates (painting/etc) it needs, but I just can't maintain things in it with my limitations. And, living so far from support makes it difficult when crisis happens I(i.e. falls). So, I'll be looking at townhouses and condos closer to work and friends. Financially it will be better, too.
Financially is another things. These medical bills have been such a big hit on me, I'm wiped out...I have nothing left in savings. We barely get by month to month. In fact, I don't know how we do it. On paper, we shouldn't be able to make it...some how we do. I stress about it each month though...and every time another medical bill comes in the mail.
M is upset about moving. She's worried about leaving friends, starting a new school, etc. All the normal stuff for her to be worried about. But, she'll be okay.
I'm constantly worried about A. He's done nothing to start college in the fall. He missed his deadlines for applications. Of course, this is all my fault. He has no place to live. He's saved no money. Despite having free rent all summer (and before that)...no bills, etc. He's blown everything he's earned. Again, his situation, though, is my fault somehow. He takes no responsibility for himself. I worry so much about him, but I just can't have him live back at home.
I still can't find a doctor to manage my pain medications. My rheumy has made several referrals, but we never get calls back. I don't know what else to do about the pain issue. I'm tired of pain every day. Day in and day out. This isn't a way to live.
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