Since I work at the same facility that my new doctor works, I was able to pull strings to be seen sooner. So, tomorrow I see my new doctor for the first time.
I'm trying to think of the positive things about this. Here is one...the new doctor is just down the hall and down one floor from my office. So, I won't have to be gone from work much to see the doctor.
She's never treated polymyositis.
I still want Dr. Lowery back. Her office called me with results from my labs, following my IVIg. My CPK levels were a bit higher than last month, but still in the normal ranges. That's two months in a row! So, I get to decrease my Prednisone again :) yeah! And, Dr. Lowery said I can always come back to her if we get insurance worked out.
Sunday, October 24, 2010
Saturday, October 16, 2010
2 months, normal CPK
2 months in a row of normal CPK levels. Yeah. The CPK this month was higher than last month...but right at the level to be considered normal. So, this is a good thing. I can try to increase PT exercises without causing more muscle damage.
Of course, CPK levels are only part of Polymyositis...but, it's taken three years to get it in the normal range. so, yeah!
I've been really fatigued. Dr. Lowery thinks that is probably due to decreasing the prednisone...just my body adjusting to the change. She said we could go slower on the taper. No way! I want off of that stuff so very much!
Got the official word from my insurance company. I won the appeal, partly. They are going to go back and pay Dr. Lowery through November of this year. But, after that, I have to find a different doctor. So, Dr. Lowery looked at the list they provided me. There were 6 names. One of them doesn't practice anymore. one of them is a pediatric rheumy. The others are at the facility where I work...there is a 4-6 month wait to get an appointment. She's going to try to get me in under an emergency basis. I can't go without treatment a month, much less 4-6 months. I really, really do not want to change doctors. Anyone want to donate the $5000 for out of pocket expenses so that I can stay with Dr. Lowery?
My strength does seem to be getting some better. That's a good thing. No where near where it was, and I think that there is some damage that won't be able to be reversed, but there's improvement none the less.
Of course, CPK levels are only part of Polymyositis...but, it's taken three years to get it in the normal range. so, yeah!
I've been really fatigued. Dr. Lowery thinks that is probably due to decreasing the prednisone...just my body adjusting to the change. She said we could go slower on the taper. No way! I want off of that stuff so very much!
Got the official word from my insurance company. I won the appeal, partly. They are going to go back and pay Dr. Lowery through November of this year. But, after that, I have to find a different doctor. So, Dr. Lowery looked at the list they provided me. There were 6 names. One of them doesn't practice anymore. one of them is a pediatric rheumy. The others are at the facility where I work...there is a 4-6 month wait to get an appointment. She's going to try to get me in under an emergency basis. I can't go without treatment a month, much less 4-6 months. I really, really do not want to change doctors. Anyone want to donate the $5000 for out of pocket expenses so that I can stay with Dr. Lowery?
My strength does seem to be getting some better. That's a good thing. No where near where it was, and I think that there is some damage that won't be able to be reversed, but there's improvement none the less.
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