You must watch this! It is so true!
Sunday, May 29, 2011
Tuesday, May 17, 2011
Progress and diet changes
My CPK levels were a tad bit high yesterday. But, not that high...so, I'm still saying we're in the normal range ;) I think that Dr. Lowery will continue to let me decrease my prednisone. Shouldn't be too much longer now and I'll be totally off of that stuff. I think I'm going to plan a celebration for the day I take the last one! There really is nothing I like about that drug.
Then, the next step...we're going to try going longer between IVIg infusions. I'm a bit worried about it just b/c I have the attitude of "don't fix something that isn't broken"...I mean, it's working, why mess with it? But, I know that insurance isn't going to keep paying for it without proof that I still need it and the only proof that they will accept is tapering me off and seeing if I become worse. So, we shall see.
I've not been able to make it to the gym much in the last two weeks b/c of medical things, but I'll be getting back to that too. It was going fairly well. Progress was slow, but there was progress none-the-less. :)
Had to have some swallowing tests, and EGD, and some other test...so, we already knew that the muscles of my esophagus had been affected and were causing swallowing difficulty. But, I'm also experiencing some severe reflux. So, now I have ulcers on my esophagus and they need to heal. And, something about my food is not digesting, so it's sitting in my stomach...I guess that is causing the reflux? who knows. But, I have a couple of new medications and need to make some diet changes. But, the list of things to eat, I normally eat anyway, so that shouldn't be too difficult. We shall see.
Then, the next step...we're going to try going longer between IVIg infusions. I'm a bit worried about it just b/c I have the attitude of "don't fix something that isn't broken"...I mean, it's working, why mess with it? But, I know that insurance isn't going to keep paying for it without proof that I still need it and the only proof that they will accept is tapering me off and seeing if I become worse. So, we shall see.
I've not been able to make it to the gym much in the last two weeks b/c of medical things, but I'll be getting back to that too. It was going fairly well. Progress was slow, but there was progress none-the-less. :)
Had to have some swallowing tests, and EGD, and some other test...so, we already knew that the muscles of my esophagus had been affected and were causing swallowing difficulty. But, I'm also experiencing some severe reflux. So, now I have ulcers on my esophagus and they need to heal. And, something about my food is not digesting, so it's sitting in my stomach...I guess that is causing the reflux? who knows. But, I have a couple of new medications and need to make some diet changes. But, the list of things to eat, I normally eat anyway, so that shouldn't be too difficult. We shall see.
Friday, May 13, 2011
Yet another day with Polymyositis
I've been poked and prodded by doctors more than I care to think about in the last 2 1/2 weeks. I'm quite tired of doctors right now. Yet, I still have my IVIg treatment on Monday and Tuesday next week.
Had some minor surgery about 1 1/2 weeks ago. That went really well. Then had an EGD on Wednesday of this week. Evidently I have ulcers on my esophagus, caused by reflux. Reflux could be caused by all the medications I'm taking. who really knows. Today I had to do another test. I'm don't really remember the name of it, but it took about two hours. I'll know the results of that on Monday.
I'm feeling really tired. No energy. Don't really know what to do with myself. I'm bored, but when I get up to do anything, my energy just drains and I hurt.
Blah.
Had some minor surgery about 1 1/2 weeks ago. That went really well. Then had an EGD on Wednesday of this week. Evidently I have ulcers on my esophagus, caused by reflux. Reflux could be caused by all the medications I'm taking. who really knows. Today I had to do another test. I'm don't really remember the name of it, but it took about two hours. I'll know the results of that on Monday.
I'm feeling really tired. No energy. Don't really know what to do with myself. I'm bored, but when I get up to do anything, my energy just drains and I hurt.
Blah.
Subscribe to:
Posts (Atom)