I'm off of the prednisone. I know there are good things about that drug. Without it many people would suffer from many things...but, there are so many bad things that come with it. So I cheerfully say farewell to the Prednisone, and hope to never have to swallow you again!
How's it going? Well, I'm unusually fatigued today. But, that's to be expected for a couple of weeks while my adrenal glands are kicking in and working on their own. They've not had to work for themselves for several years now. Time to stop being lazy and do their own work.
Maybe some of this excess weight will come off now. And the moodiness, irritability, etc.
Of course, we all continue to hope that my CPK levels will remain in the normal levels.
Wednesday, June 22, 2011
Sunday, June 12, 2011
Prednisone Free - almost!
One more decrease and then I stop it all together. So, just a few more weeks and then I'm off of the prednisone. Hopefully for good. That really feels good.
IVIg this last Thursday and Friday. Labs showed CPK was at the high end of normal...but still normal. My SED rates were elevated though.
I've been feeling fairly well. I've only had one fall in the last month. My energy level...well, it starts out okay, but it drains quickly. So, I can do things in short spurts. If that makes sense. Dr. L thinks I need to increase the time I'm putting into exercise...from 3 days to 5 days a week. I do something everyday, but she wants me to do more. It'll help with losing some of this prednisone weight and, possibly, regaining strength and range of motion.
IVIg this last Thursday and Friday. Labs showed CPK was at the high end of normal...but still normal. My SED rates were elevated though.
I've been feeling fairly well. I've only had one fall in the last month. My energy level...well, it starts out okay, but it drains quickly. So, I can do things in short spurts. If that makes sense. Dr. L thinks I need to increase the time I'm putting into exercise...from 3 days to 5 days a week. I do something everyday, but she wants me to do more. It'll help with losing some of this prednisone weight and, possibly, regaining strength and range of motion.
Saturday, June 4, 2011
Heat Intolerance
It's only in the 90's and I'm miserable...even in the air conditioning. I wonder what causes the heat intolerance? Is it the polymyositis? The medications? Or some other underlying condition we've yet to discover? Whatever it is...go away.
The results of my testing...evidently I'm not digesting my food quickly enough. A "normal" person digests their food (most of it) within 30ish minutes. Doc said after 6 hours I'd digested about 1/4 of my food. He says that is fairly common for people with Polymyositis. Interesting. I've never read that, but it makes sense...those muscles of mine just don't want to work properly.
IVIg next week.
The results of my testing...evidently I'm not digesting my food quickly enough. A "normal" person digests their food (most of it) within 30ish minutes. Doc said after 6 hours I'd digested about 1/4 of my food. He says that is fairly common for people with Polymyositis. Interesting. I've never read that, but it makes sense...those muscles of mine just don't want to work properly.
IVIg next week.
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