Last week was my IVIg infusions for the month of August. Haven't heard just yet what my CPK levels are, but I'm feeling pretty good...so, I'm thinking they are still on the decline :) I'm feeling a bit stronger, I think. I'm walking more around the house and at work...as long as it isn't too far. My breathing seems to be better. I don't feel like I'm struggling to get a breath or have something heavy sitting on my chest.
Pain meds are wonderful :) Pain is more controlled. Probably another reason I'm able to try walking around more. I've not needed one of them as often as we thought I might...so, that's a good thing too.
All in all, it's been an okay month as for the polymyositis...if only we could get rid of the medical bills! My insurance company has decided to go back and reverse payments on the last 1 1/2 years of claims to one of my doctors. It has left me with over $11,000 that I supposedly owe to this doctor. I'm appealing it. The doctor's office is appealing it. and, the HR department where I work is looking into it for me as well, but I'm not sure what the outcome is going to me. It makes me really anxious. I hate to owe money to anyone. I guess, though, I could look on a brighter side...with as much as IVIg costs...and with all the other medical expenses...$11,000 isn't all that much.
*sigh* I still don't have that much to pay.
3 comments:
Hi Tracy.
I hope you don't mind me posting this here, it is in benefit of juvenile dermatomyositis, a childhood disease similar to yours.
Vote August 30 and August 31.
http://www.refresheverything.com/makejmamemory
Please go to this link and vote for Pepsi to make a $250,000 grant to research a cure for this terrible childhood autoimmune disease, dermatomyositis, that attacks a child's muscles.
I have the adult version of this disease. I can't imagine what it is like having it and being in grade school.
About your medical bills, I am so glad I live in Canada. Getting the IVIG approved is nothing for DM. No bill because it comes from Canadian Blood Services (federal gov't). No bills, except for the first $2,000 or so (depending on income) of prescription drugs each year.
I had such hopes President Obama and Congress could have brought such a system to the USA.
It seems like your private medical insurance has the real death panels.
I hope your money problems resolve somehow.
I understand that Pepsi received the grant for the JDM!
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